Kettering community rallying round to give 'moments of joy' to three-year-old Lilith diagnosed with inoperable tumour

Lilith, three, was diagnosed with high-risk neuroblastoma stage four with MYCN gene amplification in October 2024.

She has had to endure chemotherapy, radiotherapy and numerous surgeries including a nine-hour operation to remove the primary tumour on her left kidney.

Her family were hoping she could ring the bell in January but her final scans revealed a new tumour deep in her left pelvis, confirming that it was a relapse.

Amanda Robinson contacted the Northants Telegraph to share Lilith’s story.

She said: “This has been absolutely devastating news for her family and everyone who knows her.

"Instead of focusing on what can’t be changed, her family, friends and all that know her are now trying to make the most of the time they have together creating as many happy memories as possible.

"A gofundme page has been set up to help give Lilith and her family the opportunity to enjoy special days out, experiences and moments of joy during this incredibly difficult time with the main goal being Disneyland Paris.

"The response from the local community has already been heartfelt, with people coming together to offer support in any way they can.”

More than £5,000 has already been raised for Lilith and the support hasn’t just been financial, with West Lodge Farm Park in Desborough and Hamerton Zoo donating tickets so Lilith and her family can make memories together.

Kettering Town Football Club is also supporting Lilith, posting on its Facebook page: “Kettering Town Football Club has learned about brave little Lilith and wanted to help to achieve her goal and more importantly put a smile on her beautiful face.”

Lilith’s mum Ivy has written on the fundraising page, saying: "They have told us that there is no cure for her, the tumour can't be removed but chemotherapy and immunotherapy can give us a bit more time with our beautiful baby.

"We are heartbroken. We would be very grateful for any help to make her last days as memorable as possible.

"She loves Disney princesses and would love to visit Disneyland. We would love to give her the Disney princess experience.”

Donations can be made via the fundraising page.