A kind friend will attempt a triathlon to raise money for a disabled brother and sister.
Bev Floody from Great Oakley will take on the challenge in Corby on Sunday to help pay for a mini-bus for Mia and Cory Blakey-Tew.
The pair, who live with parents Leanne Moir and Dean Blakey-Tew in Latimer Road, Corby, have a condition so rare that they do not yet have a diagnosis.
Mia, two, has baffled doctors all over the world. She suffers from an undiagnosed brain condition, has a smaller than usual brain, has epilepsy, is registerd blind and has poor muscle control leaving her unable to support her own head or weight.
Doctors did not think her condition was genetic until her brother Cory was born seven months ago, and he began to display the same symptoms.
Dedicated Leanne, a former prison officer, and Dean, a former carpenter, have now both had to give up their jobs to care for their children who require 24-hour support.
Leanne said: “The reason we need a mini-bus is that there are no cars that can take two wheelchairs.
“Mia is now too big for a double buggy, and Cory will soon need a wheelchair so that will be the only way we can get out of the house. We can’t transport them in normal car seats because of their condition.
“We need to raise an £8,000 deposit for a long-wheelbase vehicle which will make getting around so much easier.
“We also have lots of journeys to John Radcliffe Hospital in Oxford to see the specialist there.”
Bev, 54, who works for AG Construction in Weldon, said: “They are such lovely children and we know how difficult it is for Leanne and Dean to access grants and funding.
“I’m not particularly sporty so I’ve had to do a lot of training but I’ve had so much support from my husband Jez, my son Kevin and his partner Gillian.
“They’ve been fantastic.”
The triathlon begins at Corby Swimming Pool at 7am on Sunday, June 10. It consists of a 350m swim, a 16km bike ride and a 3.2mile run.
To sponsor Bev, send a cheque to 12 Home Farm Close, Corby, NN18 8HQ. You can also pay by paypal - details are availble on Bev’s Facebook page at http://www.facebook.com/#!/events/435649359780428/