A charity set up in memory of a girl who lost her battle with neuroblastoma aged just five is to help fund research and trials for treatment of the childhood cancer.
Niamh’s Next Step, the charity set up in memory of Niamh Curry who died after an 18-month fight against the disease, will help fund a European group which carries out research into neuroblastoma.
Cash from the Wellingborough-based charity will allow it to be a joint funder to cover the UK’s annual levy to the International Society of Paediatric Oncology Europe Neuroblastoma Group (SIOPEN).
Its support means children in the UK with neuroblastoma will continue to have access to clinical trials and will ensure there is continued maintenance and development of the SIOPEN database.
This is where all data on trials from European countries involved in the High Risk Neuroblastoma study is collated, analysed and used for the benefit of youngsters fighting neuroblastoma in the UK.
Niamh’s dad and chairman of the charity, Chris Curry, said: “SIOPEN played a big part in Niamh’s treatment options when fighting neuroblastoma and we know that certain vital medication would not have been accessible to her if it wasn’t for the UK being enrolled in SIOPEN.
“We are really very pleased to be getting involved, and this is just the start for Niamh’s Next Step.
“We are looking forward to making a difference and helping other children with neuroblastoma in Niamh’s memory.
“Thank you to everyone who has donated, fundraised and supported.”
Niamh’s Next Step will be providing money for SIOPEN from this month.
Neuroblastoma is an aggresive cancer which mainly affects children. About 100 children are diagnosed with neuroblastoma each year in the UK, of which only about 30 per cent will survive.
Niamh’s lasting legacy
The charity has just announced it will be holding its second golf day and gala ball at Whittlebury Hall on August 2 next year.
Last year’s event raised more than £32,000.
For details about SIOPEN follow @SIOPENneurobla.