Club’s donation helps Savannah on vital journey

Savannah Hobbs, with the cheque and members and family of the Swivel Club
Savannah Hobbs, with the cheque and members and family of the Swivel Club

A teenage girl who suffers from a rare genetic condition could be on her way to receiving help from medical experts in America, thanks to a group of fundraising friends.

Savannah Hobbs, 14, suffers from neurofibromatosis type 2, which causes benign tumours to grow in her brain and on her spine.

Her parents hope to take Savannah to America for an assessment, as more is known about the condition there.

A bank account named Savannah’s Journey has now been opened and fundraising to help pay for the trip to the States has been given a huge boost with a donation from the Swivel Club, based in Higham Ferrers.

Savannah’s mum Amanda, of Campion Close, Rushden, said: “There is no cure for the condition but Savannah is closely monitored by her superb team of consultants at the John Radcliffe Hospital, Oxford.

“At the moment she is losing vision in her right eye and also suffers from headaches and gets extremely tired. She is due to have her next assessment in Oxford in January and a decision will be made then on what the appropriate course of action should be.

“We would like to take Savannah to America to find out all the options that may be open to her in the future.”

Savannah, who joined Sharnbrook School in September, was diagnosed with the disorder in 2009 and despite the debilitating symptoms, she enjoys dance classes and having fun with her friends.

Her mum said: “She never complains and is truly inspirational. The support we have received has been overwhelming and we are so grateful to the Swivel Club for the donation.”

The club, made up of a group of friends, has raised tens of thousands of pounds for charity over the years.

Members decided to support Savannah’s Journey after being approached by Debbie Gibson-Baker, Karen Richardson, Lisa Walker and Charlie Gibson, all friends of Mrs Hobbs.

The £10,000 donation was the proceeds from a fundraising night held at Rushden Bowling Club in September.

Rodney Waterfield, chairman of the Swivel Club, said: “We are delighted to help this wonderful young girl and will continue to support her.”