Charity appeals for sensory help for Desborough youngster Owen

Desborough youngster Owen Morrison, who has a rare condition called Menkes Disease
Desborough youngster Owen Morrison, who has a rare condition called Menkes Disease

A charity is asking people to help improve the life of a young boy born with a rare genetic condition by helping to raise £1,300 for special sensory equipment for him.

Owen Morrison, 7, from Desborough, was born with Menkes Disease, a rare disease caused by copper deficiency.

The condition is characterised by growth failure and extensive neuro-degeneration.

Owen’s parents, Michelle and Daniel, are determined to make every day as special as possible for their son as they know that his time could be limited.

Having recently discovered the calming benefits of Sensory Equipment, they are working with Caudwell Children charity to raise the £1,300 needed to secure a ‘Mixed Light Sensory Pack’ for Owen.

Michelle said: “Despite being severely mentally and physically disabled, Owen is a very happy boy.

“With everything he goes through, Owen always tries to come out smiling and tries to enjoy life as much as he possibly can.

“He really enjoys the lights, images and bubble tubes, they are a distraction from his pain. He is unable to hold and play with toys so this equipment will make a huge positive difference to his life.”

Caudwell Children are asking local companies and individuals to pledge their support and take on the challenge to raise £1,300 for this much needed equipment.

A spokesman for the charity said: “Please pledge your support and help to raise £1,300, this can be through dress down days, cake sales, sweepstakes, sponsored bike ride/walk anything you and your friends and colleagues enjoy doing.

“To pledge your support please contact Stacey Smalley, community appeals fundraiser on 07812 988905 or email stacey.smalley@caudwellchildren.com.”

You can make a donation to Owen’s appeal by visiting his Just Giving page at www.justgiving.com/Owensappeal.

You can also donate via Text Giving - Text £(amount) to OMSA47.

To find out more about Caudwell Children visit: www.caudwellchildren.com.